Jim Beau in UF news

Jim Beau was featured in this article along with the Massey triplets.  All three were born with the same heart defect as Jim Beau, Tetralogy of Fallot.    My favorite part is the pictures!  Jane Ritchie refused to be in a group shot that day, so I'm pleased with the ones they chose to use.

Photo by Jesse S. Jones

CDH Conference

Back in June May May came down and we all went to the CDH Conference in Orlando sponsored by CHERUBS.   We had a great time and learned alot!  I highly recommend this conference to parents of children with CDH and even those who are expecting a baby with CDH.     We learned about a new technique for babies with severe CDH that is done in the womb.  You can read a story about it here,  or watch a video story.   We also learned about genetic research that is being done to try to determine the cause for CDH.  Alot of it was over our heads, but from the smiles on their faces you could tell how amazing their work is!     You can read here about the research.