Lately, I have really been thinking about how fortunate we were that Jim Beau's CDH was diagnosed before he was born. If he did not have the heart defect then we never would have had the level 2 ultrasound, which showed us the CDH. It is also very interesting that the heart issue was not discovered until I was 34 weeks pregnant. The heart beat had sounded normal every other time. You could say that it is a mystery, but I think it was all God's plan. My OB said he thought Jim Beau was trying to tell us to take a better look at him and I agree.
We had a cardiology appointment last week and the doctor was very impressed with how Jim Beau is doing. He wasn't worried about his weight and did not think they needed to do an EKG or an echo. We don't have to go back for four months! woo hoo!
In other Jim Beau news, he is really eating well. He gags every once in a while if the food is too thick, but he has liked everything I have given him. He isn't sitting up or crawling yet, but we will hopefully start physical therapy in the near future to help him with that. He had his heart surgery at 3 months old and we weren't allowed to do tummy time or lift him under his arms for 6 weeks, so he is just a little behind. He can get where he wants to go by rolling and doing the GI Joe scoot.
He had his first sickness recently while we were in Alabama -- pink eye and an ear infection -- but he is doing great now.
We go back to see Dr. Kays on August 17 so hopefully he will be pleased with Jim Beau's progress!
2 comments:
Hi I'm a cdh Mom too. You son is adorable and I'm so happy to hear he is doing well. A word of advice...never stop listening to your Mommy instincts. It has saved my ava many times. If the doctors say all is going well and your child shows signs of anything out of the ordinary listen to your heart and get them care. I know this sounds like something everyone does but not always. I really worry about all these cdh kids and kids that are born to birth edfects. They have such a rough start and some a rough life.
We've learned with Ava that God always has a plan. It may not look like a road that we want to travel but somehow we make the journey. I'll add your son to our prayers. If you'd like to stop by Ava's blog it is http://avaslifewithcdh.blogspot.com I'd love to help in any way.
~Terri
Love the good reports on Jim Beau!!! I bet he will be crawling by the time we see him over labor day.
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