On Tuesday morning we left Orlando early and headed up to Gainesville. Jim Beau had a 9 a.m. appointment at radiology to test for reflux so he wasn't allowed to eat or drink anything for 6 hours prior! He did not like being still for the test and cried the whole time. He had to drink strawberry flavored contrast. yuck!
After the test we spent some time with our new friend Kimberly who raises money for Dr. Kays. She called us on Friday while we were driving to Disney to ask if we would do an interview about CDH and Dr. Kays. We did the interview and then a photographer met us at our appointment with Dr. Kays to take some pictures. Hopefully it will turn out great, although Jane Ritchie refused to be in the pictures!
We have great news to report! Jim Beau shows NO signs of reflux! This is great news because it means that he won't need any surgical intervention. The bad news is that it means he's just plain picky with what he eats and Mama has to get him to eat more. Dr. Kays said that even though he wishes Jim Beau had about 5 more pounds on him, he looks great. He mentioned that he looks like he has grown into his head finally. :) Xrays also showed that everything is fine with his diaphragm. We don't have to go back to see Dr. Kays for another year but we have a cardiology appointment in May.
We went up to the NICU and saw our nurse friend Andrea, and we also ran into another CDH baby from Birmingham, Par and his parents. We have never met in person but had emailed back when Jim Beau was in the hospital. They had also been to Disney, so Par and Jane Ritchie talked all about Dumbo! It was nice to see an older CDH baby doing so great!!
Jim Beau continues with physical therapy once a week. He isn't walking on his own but will cruise around furniture and LOVES climbing. I think we are going to meet with a nutritionist some time soon as well. Hopefully I can get some tips of how to get more calories in the boy!
Thanks for all your support and for keeping up with Jim Beau!
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