Our son Jim Beau was born with a birth defect called Congenital Diaphragmatic Hernia (CDH), in which the diaphragm fails to fully form, allowing abdominal organs to migrate to the chest. Although 50% of the babies born with CDH do not survive, we found HOPE for Jim Beau at Shands Hospital in Gainesville, FL, with a surgeon named Dr. David Kays. Their survival rate for CDH babies is unprecedented.
Jim Beau was also born with a congenital heart defect called Tetralogy of Fallot. He had open heart surgery on March 9, 2010, also at Shands.
Read how we were diagnosed here. And read Jim Beau's story from the beginning here.
If you have any questions, please email me at maryareinhardt@gmail.com
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